Blog

A frustrating “state of the union”

Katie Cutie with her GangSigh. We are so close. SO CLOSE to the end. We have less than 7 months left until Kate’s end of treatment date and that feels so damn good. It’s so close we can see it, count it down and very nearly feel it in our grasp. But it is too damn far off to feel REAL. It isn’t close ENOUGH. Continue reading “A frustrating “state of the union””

#12

We’ve been radio silent over here lately…busy living life and enjoying the holidays. I’m interrupting this silence to pay a special tribute to a personal hero of mine…the MVP #12. Beautiful Mathias.

There are many perfectly written posts, Facebook messages and tributes being made to this remarkable young man, who left this world tragically too soon this past Sunday. There are hundreds of great things to say about him and every one of them is true. This 13 year old changed me…changed how I wanted to live. Made me want to be a better person and citizen of this brutifal life. He was special ya’ll. He was put on this earth for greatness. Continue reading “#12”

The Countdown

Kate recovering in the hospital after her bone marrow biopsy confirming that she was in remission, September 16, 2013.
Kate recovering in the hospital after her bone marrow biopsy confirming that she was in remission, September 16, 2013.

I cannot believe we are here. (No, really…I cannot believe it.)  Today, we are celebrating the ONE YEAR anniversary of Kate’s remission. (!!)  It also begins the one year countdown until the end of treatment. END OF TREATMENT, PEOPLE! (I hear Dr. D groaning at me…she doesn’t like for me to get ahead of myself.) But still, how could we NOT celebrate this day??? Continue reading “The Countdown”

Twelve

This is Love. Every card we received the first month, covering our king size bed.
This is Love. Every card we received the first month, covering our king size bed.

Dear Kate,

There are so many raw emotions coursing through me as I sit to write this but it feels nearly impossible to convey what is in my heart. I could tell you all about the memories of this day…a year ago that you were diagnosed. When I think back on those first hours, days and weeks, it would be easy to recall the crushing sadness we felt and the all-consuming fear. Honestly, I’m just coming around to where those feelings don’t haunt me every day. But the real truth is, the overwhelming emotion that comes to mind from the last year…is love. Love from every corner of our world. So, Kate, on this first anniversary of your diagnosis, I will write you a story like one of your favorite books, What is Love Biscuit? Continue reading “Twelve”

What Remains

Maybe it’s the stinkin’ hot weather and the wet bathing suits hanging in our mud room from Kate playing in her little inflatable pool. Maybe it’s all the beautiful babies in my mom’s group turning one year older and the memory of all of their parties this time last year. Perhaps it’s the visual reminder of the calendar pages flipping by inching us closer and closer to August. These days I’m feeling overwhelmed by sentimentality of…it all. Continue reading “What Remains”